EDUCATION AND KBG SYNDROME
In general, students with KBG thrive on consistency, structured routines, and clear expectations, using tools like social stories, visual schedules, and technology such as computers and tablets.
They benefit from breaking material into manageable parts, dynamic audio-visual supports, and engaging methods like music and performance. Providing varied instructional strategies for teaching and reinforcing concepts is essential.
KBG in the Classroom
KBG Syndrome can affect many different body systems, making learning and participation in the classroom a bit more challenging!
By implementing the right interventions, we can support these amazing children and help them thrive!
Starting School
A child diagnosed with KBG Syndrome should be enrolled in an early intervention program as soon as possible. Every state guarantees access to Early Intervention programs. These formal programs will provide support and to promote your child's development.
Educational Strategies
In general, students with KBG thrive on consistency, structured routines, and clear expectations, using tools like social stories, visual schedules, and technology such as computers and tablets. They benefit from breaking material into manageable parts, dynamic audio-visual supports, and engaging methods like music and performance. Providing varied instructional strategies for teaching and reinforcing concepts is essential.
Featured Educational Resources
Educational professionals with expertise in KBG syndrome have developed specialized resources to assist families in navigating the education of their child with this condition.
Creating an IEP
An Individualized Education Program (IEP), as outlined by the Individuals with Disabilities Education Act of 2004, serves as a personalized guide for your child within the public education system. Tailored to meet the unique needs of YOUR child, the IEP outlines their curriculum, educational strategies, and additional services (such as occupational, physical, speech, and music therapy). If your child is eligible for special education, this document is essential for ensuring their success.
Testing and Evaluation Strategies
Psychological testing is typically carried out every three years by educational institutions. Parents can request that the assessment be conducted by a designated testing specialist outside of the school system. It is crucial for parents to inquire about the specific test batteries the school specialist plans to use, as not all assessments are suitable for students with KBG Syndrome.
COMING SOON
Therapeutic Strategies for Education
Therapeutic informational sheets were developed for the KBGSA by therapists experienced in KBG Syndrome. These sheets provide general explanations of each therapeutic intervention, how they are supported by the Individuals with Disabilities Education Act (IDEA), and the KBG-related challenges they can address. Additionally, each sheet includes examples of age-appropriate goals and objectives for individuals with KBG syndrome, assessment tools, and extra resources beneficial for parents and therapists who may lack extensive experience with KBG syndrome.
Creating a Vision Statement
A vision statement serves as a guiding roadmap. Without a clear destination, defining your journey becomes challenging. Just as we have aspirations for our children, it's crucial for your child's educational team to be aware of that vision to maximize their chances of success. Prior to each IEP meeting, both you and your IEP team should recognize the significance of this vision to that all necessary actions are being taken to the desired outcomes. Utilize these helpful tools to begin crafting your child's vision statement.
High School to Adult Life
Graduating from high school is a significant milestone for all children. However, for students facing challenges like KBG syndrome, this typical transition demands additional planning, negotiation, and decision-making regarding living arrangements, employment, and the possibility of further education.
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Let's Work Together
Know a Resource we haven't listed?
Reach out to us at kbgsyndrome@gmail.com