Medical Considerations
Note: Due to the variable presentation of individuals with KBG Syndrome not all of these will apply to every student. This is a general list to consider of medical issues that may be present, the impact on the student and the accommodations that may be utilized in a 504/IEP.
Information is not intended to replace professional medical advice.
Heart & Blood Vessels​
Medical Problems
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Aortic root enlargement
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Congenital Heart Conditions
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Dysautonomia
Impact on Student:
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Restrictions on lifting (backpacks, textbooks, boxes, etc.)
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Fatigue
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Medication regimen may require taking doses at various times throughout the day
Accommodations
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Take all medical complaints seriously
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Provide unlimited access to the nurse’s office
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Adjust school schedule to allow for rest during the day while still meeting academic requirements
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Bones & Muscles
Medical Problems
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Muscle issues (hypotonia or hypertonia)
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Curved back
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Flat feet
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Loose and flexible joints
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Pain (may be chronic)
Impact on Student:
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​May not be able to sit comfortably for long periods of time
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Difficulty walking long distances
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May not be able to participate in regular physical education or field day activities
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Muscle fatigue
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Severely affected students may require use of a wheelchair
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Difficulty with penmanship and/or writing for long periods of time
Accommodations
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May need to provide a special desk/chair
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Allow access to nurse for pain management
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Handwriting modifications or use of other devices
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Wheelchair accessibility if required
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Modify Physical Education Requirements
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Eyes
Medical Problems
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strabismus (misalignment of the eyes)
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near/far sightedness
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Swollen optic nerves
Impact on Student
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Difficulty reading for long periods of time
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Difficulty seeing the chalk board/smart board/projection screen, etc
Accommodations:
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Provide seating toward the front of the classroom
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Provide computers with settings to accommodate visual disability
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Lungs
Medical Problems
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Asthma
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Sleep Apnea
Impact on Student
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May not be able to participate in regular physical education or field day activities
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Needs access to Nurse station at at all times
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Ability to carry inhalers on person or in close proximity
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Nervous System
Medical Problems
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Seizures
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Headaches/Migraines
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Hydrocephalus
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Tremors
Impact on Student
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May not be able to participate in regular physical education or field day activities
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May have difficulty completing assignments on time
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Needs access to emergency medications at all times
Accommodations
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Provide access to nurse as needed
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Allow for extended time to complete school work
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Adjust school schedule to provide more free time for resting during the day without relaxing academic requirements
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GI System
Medical Problems
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Constipation
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Feeding Difficulties including the occasional need for feeding tubes or TPN
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Failure to Thrive
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Reflux
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Cyclic Vomiting Syndrome
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Dysmotility
Impact on Student
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May need extra time with nurse for feeds
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May need extended lunch time or periods for snacks
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May need alternative bathroom arrangements ​or accessibility
Accommodations
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Provide access to nurse as needed for meds or feeds
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Allow for alternative lunchroom arrangements, additional time etc
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Allow for private bathroom or changing room as needed