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KBG Groups Around the World
The KBGSA supports the estimated 800+ individuals diagnosed with this rare disease and their families. We do this by collaborating with and educating patients, caregivers and clinicians.
We are not limited to a single country but seek to aid any and all facing the challenges of our rare disease community.
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Below we have listed other organizations serving the KBG Syndrome Population around the world as well as Facebook groups to help you find your local community.
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KBG Syndrome Organizations around the World
Note: This is not a complete list of all possible organizations or websites, but ones our organization is aware of and recommend.
US Based Facebook Groups
And the populations they serve
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International KBG Groups
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Our community is always growing.
Stop back again to see updates or learn of other events coming up!
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